Sitzungssprache ist Englisch
Patient-reported outcomes (PRO) are health outcomes that are directly reported by the patient, usually using paper or electronic questionnaires. PROs have a central role in health care research: With the rise of patient-centeredness, patient benefit has become the central touchstone for any health care intervention. This implies that we measure what really matters to patients, and that patients themselves are the ones who report on the outcomes of the health care they receive. However, given the highly subjective nature of many constructs measured with PROs (such as health-related quality of life), methodological rigour is crucial to the validity of PRO data. In this session, we will look at PROs from different perspectives, including instrument development and validation, patient-relevance of outcomes, bias in PRO assessment, and outcome predictors.
Update of the EORTC module for assessing quality of life in patients with lung cancer - introducing the EORTC QLQ-LC29
M. Koller (Regensburg, DE)
Illness representations as predictors of patient reported outcomes in patients with multiple sclerosis
J. Giesler (Freiburg, DE)
A comparison of methods for weighting patient-relevant treatment goals in psoriasis
M. Naatz (Hamburg, DE)
Using Vignettes to Detect Response Shift in Measuring Health-Related Quality of Life
J. Topp (Hamburg, DE)
Patient-reported outcome measures in pruritus: A systematic review of measurement properties.
C. Blome (Hamburg, DE)